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@devineone -you may want to cross-post this to the kidney and bladder group, also. I'm sorry to hear of this setback. Is your husband a candidate for peritoneal dialysis? It is gentler overall on a body, in my humble opinion. [My husband was on PD for 5.5 yrs before transplant]. In the course of diagnosing my kidney disorder, amyloidosis was the first one considered, then set aside.
Replies to "@devineone -you may want to cross-post this to the kidney and bladder group, also. I'm sorry..."
@devineone - my kidney disorder is caused by a very rare immune issue, less than 50 in the world ever diagnosed. The amy was first considered seeing that the renal pathologists had never seen a live case of what I have, only read about it in journals. Like @oldkarl alluded to, keep poking for answers, and please reach out to us, let us know how you both are doing
Ginger
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thank you I will do that. as far as PD we will ask, he did not want it originally bu we can see now what they say. AMY did not cause Kidney failure.