@judyth - Have you been able to connect with a support group? is 80 miles to far to travel? Here is what I found in Rochester.

Transplant support group
The solid organ transplant support group is an open group for pre- and post-transplant patients and their caregivers that meets every week.
Mondays
4 to 5 p.m.
Mayo Clinic Hospital, Saint Marys Campus
Mary Brigh Building, Conference Room 4-510
Contact: Danielle K. Peabody, L.I.C.S.W., M.S.W., at 507-284-6658