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Alpha-1 Antitrypsin Deficiency - just been diagnosed
Lung Health | Last Active: Oct 11 1:10pm | Replies (53)Comment receiving replies
Nancy, I would also recommend going to the in-person support group. It will be informative to hear the speaker and ask questions relevant to you. Making connections will be invaluable. You can also tell them about Connect and invite them to join you hear to stay connected. As this discussion remains active, it will attract more people to join the conversation.
It would be amazing if you could share what you learn from the speaker, Dr. Brantly too. Would you mind?
Replies to "Nancy, I would also recommend going to the in-person support group. It will be informative to..."
You already have started a discussion group about Alpha-1, @nancyjac. 🙂 This discussion is how we start groups. Now we'll work together to bring more people into the discussion. I'll write you a PM about details.
I look forward to your report back from Dr. Brantly's talk. When is the meeting?
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I think my husband and I are both going to go. @windwalker Terri said she was going to ask you about starting a discussion group for Alpha -1. Would that be possible to do? I'd be more than happy to report back on Dr. Brantly's talk. Thank you.