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Alpha-1 Antitrypsin Deficiency - just been diagnosed

Lung Health | Last Active: Oct 11 1:10pm | Replies (53)
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@nancyjac

You are right - I should go to a meeting. I was just looking at one support group in Orlando and see that the speaker at their next meeting is Dr.Mark Brantly. I will definitely go. Thank you.

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pattykuhns | @pattykuhns | Sep 2, 2018

This is the contact info for the Jacksonville area alpha1 group. I just recently found this group so I haven’t been to a meeting yet. I think they are targeting October for the next meeting due to Jessica’s upcoming due date. Jessica also just happens to be a genetic counselor at Mayo Clinic.
Jacksonville Alphas At Gmail (sorry the site won’t let me post her email correctly so put the words together in email format)
Jessica Jackson, MS CGC
Board Certified Genetic Counselor
Alpha-1 Foundation
Alpha-1 Support Group Leader
Jacksonville, FL

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