← Return to Help! Debilitating Fatigue

Discussion
plshelpmyfatigue (@plshelpmyfatigue)

Help! Debilitating Fatigue

Blood Cancers & Disorders | Last Active: Nov 25, 2018 | Replies (10)

Comment receiving replies
@cbb123

I had similar symptoms starting in April 2017. It took three lymph node biopsies (2 excisional and 1 core needle) and 10 months before I was diagnosed with a T-cell lymphoma called Angioimmunoblastic T Cell Lymphoma (AITL). My local oncologist at the time was absolutely convinced it was not cancer because my lymph nodes waxed and waned. Mayo Clinic in Rochester diagnosed me and we tell people they saved my life. I was in very bad shape by that point. I would recommend CT scans and to trust your gut and keep digging if needed. Here’s a link to a good article on AITL http://www.cancertherapyadvisor.com/hematology/angioimmunoblastic-t-cell-lymphoma/article/597504/
Good luck to you!

Jump to this post


Replies to "I had similar symptoms starting in April 2017. It took three lymph node biopsies (2 excisional..."

@cbb123 I think this is what my husband has (AITL) after his findings this week, and we are waiting on biopsy results to confirm. I would appreciate any and all resources you have found to help you through this time, support groups for AITL? your treatment plan? etc… I am terrified of this diagnosis. thank you