Remembering Barbara - Almost a year ago now, Barbara passed away. Barbara had the rare diagnosis B-PLL and started this subgroup looking for others to connect with for support. She gave us, who came after her, a place to start to find others who have B-PLL. When you're alone searching on internet, finding someone else gives hope. Barbara's path was a difficult one, hard to see her go through that, and yet she continued to share her experiences with us. Thank you to Barbara, RIP.