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DiscussionDoes anyone have B-cell prolymphocytic leukemia (B-PLL)?
Blood Cancers & Disorders | Last Active: Nov 14, 2022 | Replies (188)Comment receiving replies
Replies to "Dear Peggy, How are you doing? We haven't heard from you for 3 wks. Are you..."
Oh Barbara, I am so sorry not to have answered sooner--had a terrible time with my computer. I had the same kind of experience when I came home from the hospital, I didn't even remember getting home, taking off my winter gear and apparently going to bed. I've had total exhaustion periods many times over the years, being so dreadfully sick, getting all those toxic drugs, stress, etc. It all takes a toll. Hope you are hanging in there, trying not to freak out and putting faith in God. Having faith in God is why I am still alive. Hope you have a decent weekend without unforeseen problems. Do you have a pet, by the way? The love of an animal is quite healing!
Hi Barbara - I think I would have been very scared to find all the doors open and lights on! I'm glad you are ok again. Those infusions seem to be very hard on your circulation.
I've reduced my venetoclax dose due to it is killing too many of my B-cells and now I'm being monitored every other week and told I have neutropenia. I'm now scared of all germs because there's less white blood cells to fight it off. I do feel much better though than when I was on imbruvica in terms of energy.