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Does anyone have B-cell prolymphocytic leukemia (B-PLL)?
Blood Cancers & Disorders | Last Active: Nov 14, 2022 | Replies (188)Comment receiving replies
Hi bflattenor! My sincerest apologies for not answering your post sooner, me e--mail has been disabled for 2 months. You are so very brave facing and fighting B-PLL with such good spirits. I should originally have said I am living with chronic congestive heart failure, respiratory distress and total deafness. Your posts and all the others on Mayo Connect have given me the courage just to take these miserable obstacles one day or one minute at a time. I also have severe chronic pain but thanks to MC, am managing OK. We are all in some kind of boat but nothing can sink us! Best Wishes, Peggy
Replies to "Hi bflattenor! My sincerest apologies for not answering your post sooner, me e--mail has been disabled..."
Dearest Peggy, I'm sorry to hear you are having so much pain.Most of my pain is only when I am trying to walk,and since the B-PLL is making me want to sleep most of the day that's not so much.Your reference to a boat "hit me where I live" ; since I am almost a life long sailboater.....anything from 8ft.to 36ft.I've owned and sailed them all. Living on a lake makes up for that loss.
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@peggy1944, thank you for responding to @bflattenor. Did you also know that you can check your discussions, posts and notifications on the website as well? If your email is now working, click on VIEW & REPLY at the bottom of this notification and you will be brought to the discussion on the website. This way, if your email is deactivated again, you can still check your messages and discussions. It is also a bit easier to see the conversation and everyone's posts a bit easier on a webpage as well.