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Does anyone have B-cell prolymphocytic leukemia (B-PLL)?
Blood Cancers & Disorders | Last Active: Nov 14, 2022 | Replies (188)Comment receiving replies
I was given the usual 2 bags Tue. morning ,but I seldom see any difference the first day. When we arrived home it was straight to bed,and I seemed so bad George wanted to stay with me. I convinced him to go home, --and I would call him in the morning. Robin stayed until 10:00 and tippy toed out. In the morning I still wanted to sleep; so I called George and had him tell Robin I was OK. I guess that's the problem when your caregivers don't live with you. I'm going to bed soon so I can make it in the morning. I want you to know several Drs. have said my heart was good, but can't take more than 2 bags or at too fast a rate. Anemia is what I already have(but not iron poor).I don't want you worrying about me;I have all I need doing that. You are doing the right thing with your research;just be careful!!!!! I'm starting to think of you as another one of my granddaughters----take care.
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Barbara you must have a very strong heart for that amount of blood. You also have strength to go through these many infusions . It takes a good part of the day to sit for infusions. And long sitting can be tiresome too. I see people in infusion rooms reading and when I go for blood or rituxan I sit and think about anything until the bag gets low and then I want nurses to estimate how much longer it will be .
Sleep is supposed to be very important for healing - uninterrupted sleep. So i hope you got the rest you craved and have great energy now to enjoy the day