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@bflattenor

I went in on the 5th and again only one bag of blood. There is the possibility the reason has to do with the fact that I was on antibiotics up to that period.We'll see in 2 weeks, if all goes right .It's good that your Doctors are being cautious ,but still trying whatever is possible and correct. I have read that stem cell is not right for B-PLL; so don't even worry. Always check the internet before you start to think either pro or con.My fractured hip is healing very quickly. I can now put my full weight on my left foot,but due to ten years of arthritis ,my right knee is a problem that can't be treated due to the B-PLL.

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Replies to "I went in on the 5th and again only one bag of blood. There is the..."

Barbara - I never heard that stem cell treatments aren't right for B-Pll. That's interesting. If you remember the author I'd like to look that up and why they said that so I can bring it up if transplant is suggested to me again. I went to a specialist at UCSD that wanted to sign me up for transplant just about 5-6 months of being on imbruvica, and not wanting to give that drug a chance. Reason: He said that if I go into remission it wouldn't last long. He specialized in transplants so I kinda knew he'd recommend that for treatment, but it really scared me. I think his strategy was to increase chances of success of the transplant while I was relatively strong instead of waiting for the imbruvica to fail. I go for blood tests every 8 weeks now (I used to go every week for the longest time, then slowly got the visits farther apart to 2 weeks, to 3 weeks etc.) I next go in again in a couple weeks and will ask if I can stretch out the visit yet again - if they let me. I know I needed close monitoring in the beginning, and if safe I'd like to put more weeks in between visits. Imbruvica is a relatively new drug - maybe I can be on it for years like the CLL people?