I am on IVIG right now. Started at a dose of 150 g every 4 weeks. I started just as I was about to buy a wheelchair due to severe cramping in my legs. Extremely painful and I walk very slowly with stiff legs like a zombie. IVIG dramatically improved my symptoms - I could even do short walks with my dog in the woods! It stabilized at a 40-60% improvement of my symptoms. I would get improvement, but in the fourth week my symptoms would return. It turns out that the half life of IVIG is 21 days so this happens with some people. After much ado I got my doctor (who for a variety of reasons doesn't like IVIG and was disappointed when I self-paid for a trial out of my retirement it worked) to increase the frequency to every 3 weeks. Without telling me he reduced the dosing from 150 g to 70g. At this dose I didn't get the bounce and I have been walking like a zombie for the last two infusions. I have gotten him to increase it back to 100g every 3 weeks (133g every 4 weeks) so almost back to what it was so hoping for the next infusion (Monday-Wed) to bring on a miracle. My legs, feet and hands hurt yesterday more than they ever have.
My doctor is now talking about plasmapheresis which is his baby - the opposite of IVIG - take out my blood and remove my bad antibodies rather than adding extra antibodies.
Hoping to do a few more IVIG infusions at the original dose before giving up on IVIG. I know 2 people who use it to live an almost pre-neuropathy life.
Last comment: I usually don't have side-effect to meds but I itch intensely on my entire body below my neck and have developed serious eczema. Can't tell you the number of creams, lotions and pastes that I paster on my body, but so far being able to walk has made it worth it!