Hi Everyone - I too have been recently diagnosed with UCTD. I am feeling a little bit frustrated because of its name, I feel like people don't think it is a real disease. In fact my husband, who is a very caring man, made a comment of this is getting in your head. As if my pains are made up.

As everyone has said there is not much information out there but I appreciate the articles that have been posted on the website. However I am curious on a few things: Does anyone have any of these symptoms:

- burning sensation in ankle. At night when I get into bed, the touch of the sheets can send an electric shock to my ankle.
- numb lips
-fuzzy head

The reason I ask is that I don't know if these are part of my flare up or other issues.

Also because I am new to this, during flare ups, do you exercise? I am runner but the other day I knew I shouldn't run because of my ankle were too tender so I went on a power walk. I was fine during the walk but once I got home, my whole body ached. I need to continue to exercise but would love suggestions on what are recommended exercises.