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Undifferentiated Connective Tissue Disease

Autoimmune Diseases | Last Active: May 9, 2023 | Replies (75)

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@noahs

Hi. I was diagnosed Undiffetentiated Mixed Connective Tissue Disease
Or UMCTD last June 2018. As my doctors explained I have a little of several autoimmune illnesses like lupus, RA, Etc... but primarily now
My immune system is attacking my
Lungs. I am on steroids and
Immunosuppressant drugs. They are trying to taper
My steroids but
Unfortunately I have a flair up every time. Like today I have a full
Blown asthma bronchitis infection caused
By my immune system attacking my lungs bec of the tapering . It’s a tedious slow process ... tapering of steroids. And yes “undifferentiated “ is same as “idiopathic”.

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Replies to "Hi. I was diagnosed Undiffetentiated Mixed Connective Tissue Disease Or UMCTD last June 2018. As my..."

A while back I was misdiagnosed with mixed connective tissue disease and when I saw the black box medication the doctor wanted me to take when he wasn’t even 100% sure of the diagnosis I yelled at him and walked out. I don’t have anything that would lead him to believe that I had this but doctors do not like to admit they are wrong. I have complex regional pain syndrome. I don’t know how anyone missed this! It was so obvious that I eventually diagnosed myself and then went to a specialist to confirm it. I think they were confused because normally occurs in one hand or one foot and my began on the front of both of my thighs. I just hope everyone gets second opinions regarding a new diagnosis, especially if they happen to be going to the same type of doctor all the time to figure out what is wrong with them. I learned that the hard way! I did have a number of misdiagnoses and had doctors argue with me about it. I think we all know ourselves well enough to know when they’re telling us that we are having sudden and severe debilitating pain from depression and we have never been depressed, we really have to question what they are telling us. There are a lot of fantastic doctors out there but I really haven’t found one that cares very much about me, as a patient or a human except for my last psychiatrist who passed away.