1. < MAC & Bronchiectasis

Bronchiectasis: New Diagnosis

Posted by navylady @navylady, Jul 26, 2018

New to your group. Non-smoker. Pneumonia x6 in 12 years, double pneumonia twice. Was diagnosed with chronic bronchitis and COPD for past 15 years, now pulmonologist based on x-rays and MRI has diagnosed no COPD, yes bronchiectasis. Take advair 250/50 twice a day. Past ten days I am increasingly gurgling, wheezing, some chest pain. I have recently moved to Florida which I like but am having long wait times to get into see a family care NP who can hopefully refer me to a pulmonologist. I walk 20-30 minutes a day. Any ideas how to manage this now. Am worried about getting pneumonia again. I went to one walk-in clinic at a reputable hospital. They literally did nothing except take x-rays. Didn't even talk to me. Just billed $2000+ for x-rays. Do I try another walk-in clinic. I feel very alone right now with this chronic medical problem.

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america | @america | Aug 13, 2020
In reply to @windwalker "@alleycatkate & @joann, My test results came back NEGATIVE!!!! Negative for everything! Joann, I took myself..." + (show)
@windwalker

@alleycatkate & @joann, My test results came back NEGATIVE!!!! Negative for everything! Joann, I took myself off of my meds in March 2020, because of drug fatigue. I was sick and tired of taking them, plus I was feeling better and felt I did not need them any longer. I had been on antibiotics since 2013. That sounds like a lot, but the first three yrs I was only taking antibiotics for ten days a month. I confessed that I had stopped my meds to my new dr at Mayo and told her I would go back on them if she felt I should. She said I didn't have to go back on, but continue with the albuterol and nebulized saline. She gave me a script for an antibiotic to keep on hand should an infection start up. So far, so good on my end.

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Oh my goodness!! Good new Terri! I’m so excited to hear the good news. She’s a great Dr. She also took me off Tobramycin and have me use albuterol.
Hugs to you Rita

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2 replies
alleycatkate | @alleycatkate | Aug 13, 2020
In reply to @america "Oh my goodness!! Good new Terri! I’m so excited to hear the good news. She’s a..." + (show)
@america

Oh my goodness!! Good new Terri! I’m so excited to hear the good news. She’s a great Dr. She also took me off Tobramycin and have me use albuterol.
Hugs to you Rita

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It’s a great news day! Yay, Rita!!!!
Kate

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heathert | @heathert | Aug 13, 2020
In reply to @windwalker "@alleycatkate & @joann, My test results came back NEGATIVE!!!! Negative for everything! Joann, I took myself..." + (show)
@windwalker

@alleycatkate & @joann, My test results came back NEGATIVE!!!! Negative for everything! Joann, I took myself off of my meds in March 2020, because of drug fatigue. I was sick and tired of taking them, plus I was feeling better and felt I did not need them any longer. I had been on antibiotics since 2013. That sounds like a lot, but the first three yrs I was only taking antibiotics for ten days a month. I confessed that I had stopped my meds to my new dr at Mayo and told her I would go back on them if she felt I should. She said I didn't have to go back on, but continue with the albuterol and nebulized saline. She gave me a script for an antibiotic to keep on hand should an infection start up. So far, so good on my end.

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@windwalker Fantastic news, yay, well done! take care Heather

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joann | @joanng | Aug 13, 2020
In reply to @windwalker "@alleycatkate & @joann, My test results came back NEGATIVE!!!! Negative for everything! Joann, I took myself..." + (show)
@windwalker

@alleycatkate & @joann, My test results came back NEGATIVE!!!! Negative for everything! Joann, I took myself off of my meds in March 2020, because of drug fatigue. I was sick and tired of taking them, plus I was feeling better and felt I did not need them any longer. I had been on antibiotics since 2013. That sounds like a lot, but the first three yrs I was only taking antibiotics for ten days a month. I confessed that I had stopped my meds to my new dr at Mayo and told her I would go back on them if she felt I should. She said I didn't have to go back on, but continue with the albuterol and nebulized saline. She gave me a script for an antibiotic to keep on hand should an infection start up. So far, so good on my end.

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Terri,
Great news I’m so happy for you!!!
Yes drug fatigue is terrible. So glad you are off of the antibiotics. When you say you were feeling better did you still have the tightness in your chest and the cough? Or you had no symptoms at all?
Joann

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1 reply
thumperguy | @thumperguy | Aug 13, 2020
In reply to @windwalker "@alleycatkate & @joann, My test results came back NEGATIVE!!!! Negative for everything! Joann, I took myself..." + (show)
@windwalker

@alleycatkate & @joann, My test results came back NEGATIVE!!!! Negative for everything! Joann, I took myself off of my meds in March 2020, because of drug fatigue. I was sick and tired of taking them, plus I was feeling better and felt I did not need them any longer. I had been on antibiotics since 2013. That sounds like a lot, but the first three yrs I was only taking antibiotics for ten days a month. I confessed that I had stopped my meds to my new dr at Mayo and told her I would go back on them if she felt I should. She said I didn't have to go back on, but continue with the albuterol and nebulized saline. She gave me a script for an antibiotic to keep on hand should an infection start up. So far, so good on my end.

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Irony Rocks! When negative is positive. Way to go Teri. Don

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1 reply
Mentor
Terri Martin, Volunteer Mentor | @windwalker | Aug 13, 2020
In reply to @thumperguy "Irony Rocks! When negative is positive. Way to go Teri. Don" + (show)
@thumperguy

Irony Rocks! When negative is positive. Way to go Teri. Don

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Thanks Don! I am pretty stoked about it.

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Mentor
Terri Martin, Volunteer Mentor | @windwalker | Aug 13, 2020
In reply to @joanng "Terri, Great news I’m so happy for you!!! Yes drug fatigue is terrible. So glad you..." + (show)
@joanng

Terri,
Great news I’m so happy for you!!!
Yes drug fatigue is terrible. So glad you are off of the antibiotics. When you say you were feeling better did you still have the tightness in your chest and the cough? Or you had no symptoms at all?
Joann

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Joann, all of my symptoms went away including my cough back in 2016. My doctor had me on maintenance antibiotics to make sure it didn't creep back up on me.

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Mentor
Terri Martin, Volunteer Mentor | @windwalker | Aug 13, 2020
In reply to @america "Oh my goodness!! Good new Terri! I’m so excited to hear the good news. She’s a..." + (show)
@america

Oh my goodness!! Good new Terri! I’m so excited to hear the good news. She’s a great Dr. She also took me off Tobramycin and have me use albuterol.
Hugs to you Rita

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Thanks for the hugs Rita! Sending some your way too.

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Mentor
Terri Martin, Volunteer Mentor | @windwalker | Aug 13, 2020

@ling123 Hey Ling!!! Are you still out there? I have been thinking about you a lot lately. What are you up to?

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tdrell | @tdrell | Aug 13, 2020
In reply to @windwalker "@alleycatkate & @joann, My test results came back NEGATIVE!!!! Negative for everything! Joann, I took myself..." + (show)
@windwalker

@alleycatkate & @joann, My test results came back NEGATIVE!!!! Negative for everything! Joann, I took myself off of my meds in March 2020, because of drug fatigue. I was sick and tired of taking them, plus I was feeling better and felt I did not need them any longer. I had been on antibiotics since 2013. That sounds like a lot, but the first three yrs I was only taking antibiotics for ten days a month. I confessed that I had stopped my meds to my new dr at Mayo and told her I would go back on them if she felt I should. She said I didn't have to go back on, but continue with the albuterol and nebulized saline. She gave me a script for an antibiotic to keep on hand should an infection start up. So far, so good on my end.

Jump to this post

Awesome awesome Windwalker aka Terri......

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