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Bronchiectasis: New Diagnosis

MAC & Bronchiectasis | Last Active: Apr 15, 2023 | Replies (382)

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@auntnanny

windwalker....... I'm thinking I'm going to have to stop the toby. I've worked with it over a year and no differentce in the pseudomonas. Yesterday about 2 minutes after finishing toby I knew I was in more trouble. Breathing was next to impossible. I took my oxygen level and it was only 80. My younger son was here with me and I was thankful. I just sat in a chair and gradually tried to breathe a little deeper. Finally got it up to 90 but at 80, I thought I was going to fall on my face. I had used the inhalation Puleri just before toby as it is supposed to keep airways open. Big mistake. I'm just discouraged and perplexed as to why I can't make this work. Is anyone else out there with toby breathing problems????

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Replies to "windwalker....... I'm thinking I'm going to have to stop the toby. I've worked with it over..."

Oh my goodness Jan! How scary that must have been. Yeah, I have to agree with you, tobi is probably NOT for you. I am so glad that your son was there to help you through that episode. A few members have mentioned not tolerating the tobi very well, but not as extreme as your situation. Has your dr replaced it with something different?