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PKD kidneys removed at time of transplant

Transplants | Last Active: Aug 6 6:59pm | Replies (44)

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@rosemarya

@jennifer0726, I want to invite you to this discussion to meet other patients with PKD experience. You will also find the 2 short videos that I told you about.
I wish you well as you prepare for your living donor simultaneous kidney transplant and bi-lateral nephrectomy.

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Replies to "@jennifer0726, I want to invite you to this discussion to meet other patients with PKD experience...."

Thank you, Rosemary!

I actually have watched both of those videos many times while waiting for an evaluation at Mayo (after being approved in Iowa), and since approval while waiting for my living donor to be approved at Mayo as well! @jolinda’s story gave me hope, and Dr Prieto and the fact that he pioneered and perfected this surgery was the reason I decided to come to Mayo.

I first heard about Dr Prieto through two FB groups for PKD. Everyone who had that surgery in those groups had such wonderful things to say about Dr. Prieto, Mayo, and their surgical outcome.

God answered my prayers by blessing me with my living donor cousin and approval to get the simultaneous laparoscopic transplant and bi-lateral nephrectomies with Dr Prieto on 12/7/2020.

I am elated to know that in less than three weeks I will be rid of my “evil twins aka ugly twins” and have a perfect new little kidney from my generous cousin!

Thank you all for the warm welcome!

Jennifer

@rosemarya @jolinda