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jolinda (@jolinda)

PKD kidneys removed at time of transplant

Transplants | Last Active: Jan 16 2:51pm | Replies (34)

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@cehunt57

@mlmcg congratulations on your new kidney turning 10. It sounds like you are doing a good job keeping it happy in a happy new home! I think one of the reasons folks are looking for living donors (me at least) is because the UNOS waiting list is so long and is getting bigger/longer every day. There is some research that shows that a living donor transplant is more successful and lasts longer than a deceased donor transplant and there are some practical timing/scheduling issues that can be dealt with if the transplant comes from a living donor. Having a living donor also helps shorten the UNOS waiting list for others. As a person of faith I believe the transplant will occur at the right time and from the right source. I am nearly 13 years post pancreas transplant (deceased donor) and am busy trying to keep it happy in a happy body. I’m also trying to stay as healthy as possible while waiting for a kidney transplant. I just returned from annual pretransplant evaluation at Mayo and my listing has been changed to inactive because my kidney function has improved and I’m too healthy for transplant at this time!

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Replies to "@mlmcg congratulations on your new kidney turning 10. It sounds like you are doing a good..."

Bless your heart. What an experience, Six months ago, I had a non-functioning transplant removed. It was decaying and he surgeon told me it fell apart in his hand. I feel so much better now. Check out the “kidney project” for wonderful info on a bio artificial kidney expected to be available in 2020. No anti rejection meds and no dietary restrictions.

Stay healthy!