← Return to PKD kidneys removed at time of transplant

Discussion
jolinda (@jolinda)

PKD kidneys removed at time of transplant

Transplants | Last Active: Nov 16, 2020 | Replies (25)

Comment receiving replies
@kayb

I am hoping to have the same surgery. (Bilateral double nephrectomy, laproscopically, with simultaneous live donor kidney transplant) We live in Washington but the transplant center here wants to cut me from sternum to pubic bone, take diseased kidneys out, have me heal and do dialysis for 3 months and then have my live donor kidney transplant. We are in the process of making Mayo Clinic in Arizona our primary transplant place. We have 3 daughters so being away for 6 weeks will be difficult but we believe this way of doing surgery will be way less traumatic for my body. I’m excited to get this done! I can’t wait to start feeling better

Jump to this post


Replies to "I am hoping to have the same surgery. (Bilateral double nephrectomy, laproscopically, with simultaneous live donor..."

Kay,
This 2 min video tells my kidney story:

I can't even find the 3 small incisions where the laparoscopic instruments were inserted, my giant kidneys (over 20lbs) came out in sections through the same incision used for the donor kidney which is slightly larger than a C-section scar. I left the hospital on day 4 and my donor was only in 2 days total. I feel great after my one and done surgery. I can eat, I can breathe, I can move, I can sleep, heck, I can even put my shoes on without sitting down. 🙂 I am a mom too and it was important for me to get myself, my kiddos and my hubby back on track as soon as I could. Please let me know if I can help ease your mind in anyway, you are not alone. If you have questions that you'd like to ask privately you can Private Message me whenever you'd like.
Jolinda