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jolinda (@jolinda)

PKD kidneys removed at time of transplant

Transplants | Last Active: Nov 16, 2020 | Replies (25)

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@rosemarya

@jolinda, On the most basic level of understanding, I cannot even begin to imagine the physical relief you felt after your surgery – 22 lbs! However the most fantastic part is the new life that you received because of the kidney donation from your friend, and your willingness to be the first patient to undergo this process.
Thank you for sharing your story on Connect. I am confident that patients are already experiencing the benefit of this procedure.

Jolinda, is this surgery to remove the enlarged kidneys (PKD) only for patients with living donors? or can someone with a deceased donor also be a potential candidate?

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Replies to "@jolinda, On the most basic level of understanding, I cannot even begin to imagine the physical..."

@rosemarya Great question, as far as I am aware this surgery has only been possible with a living donor. The kidney removal process happens first and the surgeon can't predict how long it will take until they see what they are dealing with inside each patient. Deceased kidney's have a limited time they remain viable so it seems like it is too risky to do without a living donor. Keep in mind I am not a doctor and things are changing everyday.