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Multiple Myeloma

Blood Cancers & Disorders | Last Active: May 10, 2023 | Replies (56)

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@oregongirl

Yes. His feeling is the low results are not saying I have Myeloma nor are they saying that future test will show low percentages as now. So one yr from now more tests. I texted my PC and RA doctor who referred me to Oncologist take positive steps to follow my blood work and not wait for one yr. My question if you have tests showing even 1 percent where did that 1 percent come from. Not only that but would it not be best to get rid of small percentage NOW?

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Replies to "Yes. His feeling is the low results are not saying I have Myeloma nor are they..."

I’ve been “sitting on it and watching it” with my primary care physician and my hematologist. They follow patterns in blood results OVER TIME and that diagnosis is WAY PREMATURE still and I’ve had “this” since my mid 30’s and now I’m heading to age 60 and there was still a decision to wait on bone marrow biopsy.

You really can’t DEMAND a diagnosis and weigh it fairly.

I still don’t “have” multiple myeloma but I have anemia and hyponatremia and electrolyte imbalances. We have added elemental iron over the years and then doubled the daily dose to eventually remove iron deficiency as the cause of the lab results similar you are looking at.

Most people get by with increasing ferritin (iron) and there are a zillion other things that can cause such lab results.

My dr said to look for horses before we look for zebras.

I got the feeling I could probably INSIST on getting the bone marrow biopsy to VERIFY I might someday have a form of blood cancer. Then I could have my long-awaited DIAGNOSIS, maybe.

It still looks like could be lupus and could be a lack of proper rest and definitely could be caused by dietary supplements we all use. My choices were diuretics and made the electrolytes worse.

Getting the diagnosis is never a guarantee of anything but an opinion.

I gave it a lot of thought over the years and I decided to “get busy living or get busy dying” and I’ve had 58 years of misunderstood anemia and it’s starting to look worse but the cardiologist said I am ok but will have problems later in life and the nephrologist said I need to EAT PROPERLY and THAT was the most important detail I got.

Eat right, exercise, sleep right. You won’t get multiple myeloma nearly as soon, if ever.

Every dr I have said so.

We are stuck with self care management…