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Multiple Myeloma

Blood Cancers & Disorders | Last Active: Jun 23 10:21am | Replies (58)

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@JustinMcClanahan

Hello @oregongirl. You may notice I moved your discussion to the Blood Cancers & Disorders group. I am inviting a few members who have experience and have discussed myeloma to share their experience. @1nan, @beckyoutlaw1115, @ozys, @jeanroberts, @stephanieprieto, and @lisa54 have all discussed being diagnosed with a form of myeloma or being a caretaker for a loved one who has been diagnosed. They may be able to share some of their experiences with the diagnosis process and what they will be facing next.

@oregongirl, You mentioned you are sending note to your primary care physician and your RA, have you had a chance to discuss these results with a hematologist?

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Replies to "Hello @oregongirl. You may notice I moved your discussion to the Blood Cancers & Disorders group...."

Yes. His feeling is the low results are not saying I have Myeloma nor are they saying that future test will show low percentages as now. So one yr from now more tests. I texted my PC and RA doctor who referred me to Oncologist take positive steps to follow my blood work and not wait for one yr. My question if you have tests showing even 1 percent where did that 1 percent come from. Not only that but would it not be best to get rid of small percentage NOW?

My sister passed away from Multiple Myeloma last November. She was diagnosed very late in her illness.
I have had abnormal low indicators as well. My rheumatologist referred me to a hematologist. Getting appointment soon. I will let you know where I’m at after more blood tests. The Watch and Wait is scary to me as well.