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Allodynia: Anyone else sensitive to touch?

Neuropathy | Last Active: Jun 8 2:33pm | Replies (144)

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@kanaazpereira

Hi @indiana9,

Welcome to Connect. Allodynia can be a symptom of several different nerve conditions, or it can occur on its own. Someone who has allodynia feels pain from non-painful stimuli. For example, a person may feel pain from a light touch or when brushing their hair. https://www.healthline.com/health/allodynia

I'm tagging @mloren @3michele3 @keyoeste1 as they've shared their experiences about very similar symptoms; you can view the discussion here:
"Electric Shock" type pain in my scalp! https://connect.mayoclinic.org/discussion/electric-shock-type-pain-in-my-scalp/

How long have you had symptoms of Allodynia, @indiana9? Have you had to make lifestyle changes to cope with this condition?

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Replies to "Hi @indiana9, Welcome to Connect. Allodynia can be a symptom of several different nerve conditions, or..."

I've had it about 5 years. They haven't decided exactly what I have yet. Been seeing different drs for about 4 yrs, Had emg and they confirmed I also have small fibre peripheral neuropathy in hands and feet. They're still trying to figure out why. My brother has similar issues, only his are worse. He's been diagnosed with sjogren's and has ivig treatments every 3 weeks.. I see another rheumatologist at the end of August.