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← Return to Hernia Surgery scheduled
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It is a scary process when plans change especially when preparing for something as important as an organ transplant. Although I am not a doctor it make sense to me that your husbands medical team would like to see him pain free and as healthy as possible as he waits for a new liver. Constant pain is incredibly fatiguing on every level: mentally, spiritually and physically. Have a candid conversation with your Mayo team so you can better understand the change of plan. Hopefully hernia surgery improves his quality of life and frees him from the constant pain he has been experiencing.
Replies to "It is a scary process when plans change especially when preparing for something as important as..."
@hogan, I understand your concern and confusion. It is okay to talk to the transplant team about the reasons for the change. As the spouse/caregiver you naturally want to understand what is going to happen to your husband. Do you have a nurse coordinator that you can talk to?
From my experience, sometimes changes can happen quickly during the waiting time, and my transplant team was always alert and ready to respond appropriately. My husband was equally nervous and concerned while he stood by my side throughout my entire pre- transplant time.
Hugs and prayers,
Rosemary
@rosemarya, My husband had a MRI, C-scan, and blood work done today. Just spoke with him and he informed me that his liver dr. has said no to the removal of the hernia. I hate when I am not able to attend his dr. appointments. I don't think he gets the information right or able to relate it back to me. So now he is depressed and upset cause he really want it removed he feels once they remove the hernia most of the pain that he is experiencing will be gone. confused
@hogan_g1937, I am so sorry to learn of this disappointment for your husband. I can understand how upset he must feel right now. In hindsight I can see where disappointments in my transplant time turned out to be blessings. I do hope that this is the case for the both of you.
I want to share with you that there many times when my husband and I (40 yrs married) sat in each others arms and cried like babies, because we were so confused and frightened. Our friends thought we were brave. Ha! There is no such thing when waiting and being so sick.
Did he travel a distance to his appointments? Will he be home tonight or tomorrow? Maybe he will have had time to process his thoughts and will be more ready to share the difficult conversation with you.
Hugs
@rosemary, no we are about 15 minutes from the medical center here in Houston. He was in much better sprits when I got home from work. He cut the yard and was feeling pretty good. He talked with his liver dr. and he is going to review and let him know if it is a go for him to have the surgery. So hopefully it will be a go. I prefer that he didn't have it because of the danger, whatever that is not sure what the dangers are. But if it will give him some relief from the pain I will be ok. Thanks for your caring heart
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@jolinda Yes I am definitely praying for some pain relief and that the surgery goes well. Just nervous cause in the beginning he was told several times no to the hernia surgery. I guess I am wondering what changed their minds. I guess it really doesn't matter as long as he is relived of the pain that the hernia is causing.