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Bilateral Mastectomy or not

Breast Cancer | Last Active: Mar 1, 2021 | Replies (30)

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@goxango

Hello, I am newly diagnosed at Mayo Clinic with Stage 0 DCIS.I am in the decision making stage . I see my surgeon 1/22/2020.
What did you end up deciding on. How did you do?

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Replies to "Hello, I am newly diagnosed at Mayo Clinic with Stage 0 DCIS.I am in the decision..."

@goxango
What you need to keep in mind is that each of us has a different diagnosis based on the pathology of a biopsy or surgical result. Your surgeon will have your complete pathology report and will be able to best counsel you on options going forward. Prepare for your appointment now by obtaining a copy of your pathology report, looking for information online of the results, and writing down your questions. Keep us apprised of how your appointment goes. We'll be rooting for you.

I will answer for myself and sister who does not follow this forum.

I had Stage 2 DCIS so my treatment plan will be different then yours. I had lumpectomy, chemo and radiation. Diagnosed in 2018.

My sister diagnosis is similar to yours. She was diagnosed with Stage 0 DCIS in Nov 2020, Hers was found early during routine mammogram, had a biopsy, follow up appt at Mayo Breast clinic and given the choice to monitor or surgery. She chose surgery, area removed and margins were clear. Nothing new was found and after surgery she had follow up at Breast Clinic and will be taking AIs and monitored in future. No chemo or radiation required.

Just a warning, after surgery the drs scheduled appointments with radiation and other drs. She became concern thinking they found something they had not told her. It turned out they had scheduled the appointment just in case they were needed. Once pathology reports came back, those appts were cancelled.

I had genetic testing after my diagonals and no reason to suspect cancer was due to genetic, just coincident that both me and two sister ended up with breast cancer. All three of us selected lumpectomy.

I think the most stressful time was right after diagnosis, once a treatment plan is established my stress level was reduced.

Prepare questions prior to your surgery appointment and if possible bring someone with for support or another set of ears to listen to what drs tell you.

Hope you the best

Laurie