1. < Diabetes & Endocrine System

Possible Adrenal Issues

Posted by Marianne @mrmie, Jul 16, 2018

I'm wondering if there is much discussion on here related to adrenal diseases (primary or secondary). I have had live-changing, wicked fatigue for 2 years. It has also happened in my twenties and 1 year in my thirties. This round hit at age 43. I was working full-time, working out, and loving life. I had an endocrine work-up and was told everything was negative except for reactive hypoglycemia. However, in doing my own research (from reputable medical sources), I have found some things that contradict what my endo told me. He thinks my symptoms are related to elevated Epstein-Barr titers. However, I was told by an infectious disease doctor that I do not have EBV. So, the endo recommended Mayo Clinic. Has anyone had experience with going to Mayo for these symptoms (extreme fatigue, hypoglycemia, salt cravings, increased thirst, decrease appetite)? It seems like most doctors just write it off as depression, not exercising, not eating right. But I'm probably one of the few patients that actually eats tofu and sardines! And I absolutely would love to get back to running and lifting weights. But that was difficult when I couldn't even take a shower at my worst. Now I am able to take care of house chores and I do go on walks. However, I usually need to nap later in the day and feel worse after physical activity. Thanks for listening! I appreciate any input.

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dorisena | @dorisena | Jul 8, 2019
In reply to @robjohn "Hi Ethan, Thanks for the reply. The physicians mostly seem to have the attitude that I..." + (show)
@robjohn

Hi Ethan, Thanks for the reply. The physicians mostly seem to have the attitude that I am just old and ignorant. I did manage to get an appointment with an Endocrinologist who took a blood sample and sent me for a ct scan. She said we will watch it and see what happens, didn't schedule anything else. I asked Neurologist do I have Parkinson's or something else. His reply was you have Parkinson's tremor but not full-blown Parkinsons. His exam was walk to the end of the hall and back. Prescribed Leva-dopa and Selegiline. I am concerned that I could be harming myself taking something inappropriate and letting the true problem do its damage.

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I saw my neighbor with Parkinson's last night and he is slow but functions o.k. in public. He doesn't communicate much, but then it was not his social group, just his wife's. She said he is supposed to exercise a lot. I learned in my Physiology class that the doctors wait until you have a real disease and then they try to treat you. My doctor has changed to Pediatrics and he is salaried to the big Hospital company, so I get checked, offered pills, and that's it. At my age, I dismiss surgery unless it is cancer, and I believe surgery is a good approach for cancer, as well as diet and exercise, if possible. I read that the brain can regrow new cells. It's a start. Dorisena

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