Replies to Hello @marianne, I am sorry to hear you are going through so many troubles and symptoms….

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Infectious Diseases | Last Active: Sep 1, 2018 | Replies (6)

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@JustinMcClanahan

Hello @marianne, I am sorry to hear you are going through so many troubles and symptoms. You mentioned that your endocrinologist recommended that you go to Mayo Clinic. Did he discuss giving you a referral? If so, I recommend following through and asking that he give you a referral. I think you may also may find it worth your time to check out the following discussion as well, https://connect.mayoclinic.org/discussion/treatment-for-chronic-epstein-barr/. I see that you also posted in a discussion about adrenals. While we wait for others to join in, or while you check out the chronic epstein-barr discussion, how have you been doing with your reactive hypoglycemia?

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Replies to "Hello @marianne, I am sorry to hear you are going through so many troubles and symptoms...."

Marianne | @mrmie | Jul 18, 2018

Thanks @JustinMcClanahan for the info. The hypoglycemia is under control now. It's usually only really bad when I am in a severe relapse. My endo said to have my PCP do the referral. I just got a new PCP and she is referring me to another doc who likes dealing with these mystery illnesses. I will see what he says and also get in with another endo for a second opinion. I know it could take several months to get into Mayo so I also was considering getting the ball rolling on that in case I need it. I've checked out the post you mentioned. Whether or not I have EBV, it is nice to know I'm not the only one feeling like this. Thanks!

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