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← Return to MAC in sinuses + lungs?
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Brenda I have only been diagnosed with it in my lungs. However we are looking into the possibility it is in my sinuses as well. I had several dental implants in 2015. I have never been so sick or had such horrible sinus issues/infections including debilitating migraines since those implants. My entire family is convinced my lung MAC is from my frequent invasive dental surgeries over time. I will let you know. Irene
Replies to "Brenda I have only been diagnosed with it in my lungs. However we are looking into..."
@macjane, Hi Jane. Will you please elaborate on that statement?
Irene5 I had all my bottom teeth pulled last year! It was so difficult for me to do. And my surgeon said it was the Sjhgrens! No one said it was from MAC! Now I think it is. Because of my weight loss I had to do bone implant and do implants with post only. It’s good to learn new stuff even the doctors could be wrong sometimes.
@america I am so sorry! Sjögren causes dryness which leads to tooth loss which is probably why you were told that. Many people with Sjögren’s have MAC probably because the former is autoimmune which seems to be a contributing factor for MAC. Sending you a hug. Been there done that!
Very interesting. I am new to this forum. I was diagnosed with MAC back in 2008 was only treated for a couple of months- became allergic to rifampin and then elevated liver enzymes on remaining 2 antibiotics(Ethambutol and Azithromycin) Treatment was stopped at that time and nothing else done I have been stable until 2018 when I had a tooth pulled and had earache then sore throat then sinus issue and down into my chest. I have been sick with sinus and lung issues since. (No sinus issues to speak of before that) I was very sick Aug/Sept 2021 and Jan 2022 Had sputum culture and CT done to find MAC present as well as pseudomonas Had 2 sinus surgeries Feb 2020 and July 2022 and sick since MAC confirmed in sinus as well as lung and just beginning tx again (clofazamine, Ethambutol and azithromycin) Got sick again lung and sinus over past couple of weeks - did another sputum sample and pseudomonas present again. Had to stop MAC tx and switch antibiotics to treat pseudomonas. In my opinion, looking at recent events- I believe I developed the pseudomonas when tooth extracted- was treated with high dose steroids and maybe reactivated my MAC? I have said all along my tooth being pulled had something to do with me being sick.
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@windwalkerTerri I am sorry to say if you use only one side to chew on you will probably have issues with that side over time - hopefully only after a long time of chewing, and by then there will be a cure for MAC so it won’t be a big deal. That’s how mine went - one side at a time. My stress was always in my mouth which along with low bone density contributed to my tooth loss. At least you still have options Terri. That’s the good news!