← Return to Chronic Kidney Disease (CKD): How do I stop progression?

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@annav4

Hello @bdade59! Thanks for opening up about your CKD and cancer. I can't imagine going through both! You must be an incredibly strong person! I was diagnosed with Alport Syndrome, a form of inherited CKD, 5 years ago. I was diagnosed at stage 3 (eGFR 50%), and I stayed in stage 3 for over 3 years. I have recently meandered into stage 4. However, I want to encourage you, even with an eGFR of 20%, I still feel pretty good! Outside of anemia (which can be controlled with hormone replacement shots) and some weakness and lethargy, I feel fairly normal. I am able to yet work and do full-time school, even though I am approaching my transplant evaluation (in August). I hope that can be an encouragement for you! There is life outside of dealing with the messiness of CKD! God is yet good! Thanks again for sharing!

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Replies to "Hello @bdade59! Thanks for opening up about your CKD and cancer. I can't imagine going through..."

@annav4 - Anna, Welcome! I am happy that you have shared your story because your message is comforting and encouraging.

I see that you are anticipating a kidney transplant in August. That is fantastic! My liver and kidney are from a deceased donor so I did not know when the transplant would happen. I cannot even begin to imagine what it feels like to know in advance. I send you my prayers for a comfortable recovery.

I would like to invite you to visit the Transplant Group. There are others who are sharing about their transplants as donors and as recipients. Know that you are welcome to enter into any of the conversations at anytime.
Transplant Discussions - https://connect.mayoclinic.org/group/transplants/