← Return to Edema causing pain standing and walking...help

Discussion
jeanne5009 (@jeanne5009)

Edema causing pain standing and walking...help

Transplants | Last Active: Jul 14, 2018 | Replies (12)

Comment receiving replies
@rosemarya

@jeanne5009, Please call your transplant coordinator or doctor. I am not a medical person at all, but with ESLD, it is possible to develop Kidney failure. Since you say this is getting progressively worse, do not wait for your PCP to return.

Are you elevating your legs? This is the only thing I know to do in addition to what you have mentioned.

In my situation, I was swollen with abdominal ascites, and edema made breathing difficult and any movement I had edema and my legs and ankles were swollen. I was miserable, and too weak to do much of anything. I don't know how much was related to my kidneys, but I did have acute renal failure and needed dialysis until I could transplant. Don't wait until it could becomes an emergency!

jeanne5009, Let me know what you find out.
Rosemary

Jump to this post


Replies to "@jeanne5009, Please call your transplant coordinator or doctor. I am not a medical person at all,..."

@rosemarya @colleenyoung
Talked to nurse coordinator. They are increasing Spirolactone and fu with blood work to check kidney function.
Family Dr. substitute sent me for xrays and will follow up next week. So Im on it. Thanks for your good advice as always.

Thanks for updating us on the situation. I was holding my breath if truth be told. Good to hear you and your team are on it.

@jeanne5009, I am glad that they are on top of it. With ESLD, it is always best to make the call to your coordinator, even if you feel awkward about it. A person in normal health might be able to wait something out, but not someone with a compromised organ. You did the best thing for you. I hope you get some relief.
Hugs and prayers,
Rosemary