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Obliterative Bronchiolitis (OB) vs. ILD or CLD?
Lung Health | Last Active: Jul 29 1:32pm | Replies (25)Comment receiving replies
I was diagnosed Aug 2018 with Bronchiolitis obliterans. I vaped e cigs for about 4.5 years prior. I stopped vaping. I have not got any treatment. I had a mental break due to harassment at work and my breathing is getting worse and everyone asked how I got my SSDI so fast. I guess with all the retaliation going on at the Post Office and the EEO crap I just didnt deal with it. I cant keep acting like im ok. I need to get help. I resigned from USPS in April and I have no insurance. I just told my mom and family a few days ago. Im only 39. I have been wheezing very bad and even woke up last night from it. I am scared. I would like to talk to someone else who also has this OB aka popcorn lung or Bronchiolitis obliterans ( BO )
I have not had a lung transplant.
I am too scared to let them. I had a ct scan w contrast aug 2018 then they diagnosed me. It would be nice to make friends with someone going through the same.
Replies to "I was diagnosed Aug 2018 with Bronchiolitis obliterans. I vaped e cigs for about 4.5 years..."
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I would love to be friends and talk about our different lung issues. I was diagnosed with COP in 2018 after several bouts of pneumonia. Had to have one lung drained from a pleural effusion. Also grew up with asthma. Then last year I got very short of breath. Doctor did full range of lung tests, blood tests and a lung biopsy. Initially told my ANA was very high but other lupus markers were negative. Was told I have Interstitial Lung Disease, and COPD-Emphysema. Lung biopsy did show the ILD was dormant, leftover injury from radiation (recurrent breast cancer on the chest wall). And yet, most of the time I seem ok???
So, those are the diagnoses. Mull that over and get in touch when you have some time we can chat. You can also text me directly if you want to go that route, let me know.