@auvil2020 Welcome to Mayo Clinic Connect, a place to give and get support. You and your family have been through a lot. At face value it certainly appears to be an inherited family trait.

I moved your question to a lively discussion on this topic. Where members like @jenniferhunter @migizii @bigbdk @fracturedd @randolph @giller198 @alamogal635 @thankful have discussed this topic in the past.

I'm wondering if you have considered going to a specialty or teaching hospital for a second opinion?