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Paralyzed Diaphragm

Lung Health | Last Active: Nov 20 5:32pm | Replies (341)

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@nla4625

I met with the thoracic surgeon and his PA separately yesterday regarding plication surgery for a paralyzed left diaphragm. The surgeon said a paralyzed diaphragm wasn't life threatening, people can live with it, and the decision to have surgery was symptom-driven. I gained a clearer understanding of how my floating paralyzed left diaphragm was actually hampering my breathing, which I hadn't understood before. That being said, I want to see if breathing exercises and losing weight will help before undergoing surgery. I moved from SE MN, where I received outstanding medical care at Mayo for 20 years, to western PA to be nearer family. Finding excellent medical care and whole support systems when you move to a new place is difficult, to say the least; but I think this surgeon really knows what he's doing. He's head of thoracic surgery at one of the two major medical centers in Pittsburgh and specializes in minimally invasive lung surgery using robots. If the breathing exercises and losing weight don't help, I'll probably go ahead with surgery in the spring. He makes his decision on how to do the surgery, ie through the stomach or side, in the operating room based on how clearly he can see inside my chest cavity to operate the robots doing the sewing for the plications across my diaphragm. Does anyone have any information if breathing exercises overcome the negative impacts a floating diaphragm has on breathing? Thanks! This is really a tremendous resource. Nancy

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Replies to "I met with the thoracic surgeon and his PA separately yesterday regarding plication surgery for a..."

Nancy, I bought a Peloton exercise bike and it has done wonders for me. Not only increasing my lung capacity but weight loss as well. Even with a paralyzed diaphragm I am in the top 3 to 4 percent of all riders now in 6 months and I still continue breaking my own records at 56. You may not want to spend that type of money, but it has been worth every penny. Not only is it safe, it is easy on your joints and low impact. If you still have mobility and can get on an exercise bike I highly recommend one. There are cheaper versions out there too. It took me a couple months of hard work and I really noticed a difference. I am off all prescribed medications now after 6 months. I pushed myself very hard to get to this point. At your age you may not be able to achieve what I did in such a short period of time, but I do know exercising and weight loss improved my health tremendously. Please consult your doctor before trying what I did, but I am a new man now. Good luck!
Brian

@nla4625 Hi Nancy, I ran across your post and wanted to pass some information along since you discussed a paralyzed diaphragm. Another member had shared a doctor's name in New Jersey who does graft surgery to repair a phrenic nerve. Here is the website where you can find the information. https://www.advancedreconstruction.com/