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Paralyzed Diaphragm

Lung Health | Last Active: Apr 9 7:23am | Replies (333)

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@bigbdk

Being one who has went through this surgery, I recommend exhausting all options before having this surgery. I am in pain all the time from this surgery. There wasn’t anyone I could find online that had had this surgery so I went in not knowing what to expect. I know hard exercise has really helped me expand my breathing but that may not be an option for you. I wish I had tried other options. The surgery itself is very very painful without strong opioid pain relievers which are very addictive and you will go through withdrawals when coming off them. Just my opinion and I wish you the best. Brian

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Replies to "Being one who has went through this surgery, I recommend exhausting all options before having this..."

Brian -- I really sorry that you had such a terrible experience with this surgery and are in constant pain. I can't even imagine. Your posts have really helped me to trust my instincts that I don't want this surgery now or at all unless my floating diaphragm is causing something life-threatening. Thank you! When I first talked to the thoracic surgeon, he said there were 2 ways they could do the surgery -- through my stomach, which would lead to a two day recovery period in the hospital, or through my side, which would lead to a five-day recovery period in the hospital. The latter was a total red flag that this wasn't a walk in the park. I had brain surgery and treatment for bleeding ulcers at Mayo that resulted in two separate hospital stays of five days each and was a pretty miserable sick puppy. At my age, I don't just bounce back. I had debilitating headaches for two years, chronic fatigue, and two bouts of depression where I learned to pace myself and be happy for what I could do. That will bode well for me in this situation, even though I will make every effort to improve my breathing. Being a reformed type A personality, I learned the concept of enough and whatever I could do was enough...particularly in dealing with blinding headaches. From doing my own research on headaches, I found they were being caused by aspartame...a packet of equal in my coffee in the morning and a diet coke in the afternoon. When I eliminated them from my diet, the headaches stopped. What a blessing not to be in constant pain. I wish the same blessing for you. Are you near a clinic that has a program to help people deal with chronic pain? If you haven't tried that route, I hope you will. Was your surgery through your side or stomach? Take care... I'll let you know what the doctor says next week. Thanks again. Nancy