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Paralyzed Diaphragm

Lung Health | Last Active: Nov 20 5:32pm | Replies (341)

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@johnbishop

Hi Steve @steveflorida, welcome to Connect. I found the following information that may be helpful.

Phrenic Nerve Repair
-- https://www.uclahealth.org/plasticsurgery/phrenic-nerve-repair

Plication of the Diaphragm
-- https://www.bcm.edu/healthcare/care-centers/general-thoracic-surgery-clinic/procedures/plication

Are you considering one of these treatments?

There is another discussion that might want to read through to meet other members with similar symptoms:

> Groups > Lung Health > Phrenic Nerve damage
-- https://connect.mayoclinic.org/discussion/phoenix-nerve-damage/

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Replies to "Hi Steve @steveflorida, welcome to Connect. I found the following information that may be helpful. Phrenic..."

Hi, this is my first time posting, and not sure I'm doing it correctly. I have a paralyzed left diaphragm, was scheduled for diaphragm plication surgery, and recently found out about phernic nerve renerbation surgery done by Dr. Matthew Kaufman in New JErsey. As far as I can tell, there are only two treatment centers on the USA who offere this: Dr. Kaufman's New Jersey clinic & UCLA. Unfortunately, my health insurance is tied to state affordable care act & will probably not pay for out-of state & out-of-network surgery. Has anyone on this site tried to travel to one of those locations & how did it go with your insurance?
Alternatively, does anyone know of any surgeon at Mayo Clinic or in state of MN offering this surgery? Thanks for any leads!