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Paralyzed Diaphragm

Lung Health | Last Active: Nov 20 5:32pm | Replies (341)

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@danielad

@giller198 -- Hello John, I too have had a paralyzed right diaphragm, so I will share my story with you. Mine was caused by an anesthesiologist. Last June I was about to have surgery on the right wrist to repair 2 broken bones following a fall, and the anesthesiologist attempted to give me a "nerve block". Unfortunately, he ended up in the Phrenic nerve. Within a matter of seconds I realized I couldn't breath or talk. INCREDIBLY frightening! The situation has resolved by itself in the months following the incident, but it was quite a journey! My pulmonologist told me there was nothing to do but wait it out, as it would resolve over time. She also told me that the most important thing I needed to do is to keep my lungs healthy by doing breathing exercises very often. I used a Spirometer in the hospital and at home. Hated the exercises and the cough, but it was necessary! Having only one lung working is not ideal, and I did feel out of breath often, but I tried to concentrate on positive thoughts and after a long while, things got better and finally got back to normal. I have to see my pulmonologist at the end of the month for a chest x-ray and a breathing test. What did your pulmonologists tell you to do for this? I guess you had chest X-rays and all is still the same? Wishing you the very best!
--Dee

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Replies to "@giller198 -- Hello John, I too have had a paralyzed right diaphragm, so I will share..."

Hi Dee, Finally getting around to answering you. I originally thought my diaphragm problem started because of my heart valve surgery. It started just a year after the surgery and my heart surgeon and two pulmonologists all agree that if any damage to the phrenic done during surgery would have shown up right away. I have been thinking about maybe scar tissue that might have grown up around the nerve. I had three drain tubes in my chest that were pulled out several days after the surgery. I really get short of breath when I'm swimming. Which I use to do a lot of and still try. I recently inquired at the Mayo Clinic in Scottsdale AZ about an electromyography test on the phrenic nerve. I was turned down because of Medicare Advantage Plan that I am on. I'm guessing if I want it done it will be out of pocket. I still use a spirometer a couple times a week just to make sure I'm not losing any lung volume. Other than the swimming I'm doing pretty good. When I remember I also do breathing exercises. Take care, John