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Paralyzed Diaphragm

Lung Health | Last Active: Apr 9 7:23am | Replies (333)
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@usmccam

Hi @teresa My NP suggested this might be the issue and wants to do a pulmonary test to rule out on the 23rd. Meantime, breathing has become very difficult now regardless of the position I am sitting. They did start me on BiPap but I have stopped it as it made me suffocate and start to choke. All of my research into this possible dx points to it exactly as my symptoms are identical and I feel it was surgically caused. Thank you for your reply.

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Replies to "Hi @Teresa My NP suggested this might be the issue and wants to do a pulmonary..."
Teresa, Volunteer Mentor | @hopeful33250 | Jan 19, 2019

I am glad to hear that you will have a follow up on the 23rd so that you can know for sure about this possible diagnosis, @usmccam. I pray that you will get some answers.

I see that you were started on a BiPap but had problems with it. In case you would be interested in looking into this now (or after your appointment on the 23rd), I would like to invite @johnbishop, into this conversation. John is a Connect mentor who facilitates discussion groups on C-Pap and he may be able to direct you to discussions on use of the BiPap. Often there are adjustments you can make with these machines so that they can be used more comfortably.

I hope your appointment on the 23rd gives you some answers. Will you post again with an update after the 23rd?

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Dawn, Alumni Mentor | @dawn_giacabazi | Jan 19, 2019

Hi @usmccam
I have read some of you replies and questions. I first want to say THANK YOU for your service.

I to use BiPap & CPAP. Based on my experience I absolutely hated it when I started using the machines. I would rip that mask off gaging and choking and gasping for air. My doctors changed my settings to a range so the pressure would auto adjust to my needs. As we awake our need for assistive breathtaking is less and s my doctor explained to me that’s when we struggle with the pressure. I have no issues with it now. I have developed some shortness of breath when I lay on my left side so I will often put the machine on while I’m awake reading to help alleviate those symptoms. Has your doctor talked about adjusting the pressure on your machine?

Thanks
Dawn

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