Arachnoiditis: Looking to talk with others

Hi don, I'm sorry don I always need proof.

I know they won't listen to you or me especially I found at the Mayo it's like beating your head against the wall. That is why I'm going to try this Matt and I will let you know if it works or helps as I know you're in severe pain. That is why we got to try different things and they will not endorse it or say it's anything good because it's not covered by insurance and therefore they cannot endorse it because the hires up a Mayo Clinic will not let them. Hang on and let's see what happens, but I suggest you go to back healthy wave mat website and just talked to them and look up some of the technology. You have nothing till you lose.

Hi don, I Wish You Good Luck!! Smile Keep posted.

I will be your proof when I try out this pemf mat

I think you will find getting proper treatment for this disease IS like banging your head against the wall. I do my own research and get my doctors to order what I need. That doesn't mean I always feel better but it helps. Medical marajuana, specifically cannibis oil with equal parts THC and CBD, has been a huge help when opioids have failed to make a big enough impact. I know what this disease can do to someone's life. I live it. But looking outside of the box is going to get you farther than any doctor will!

I going to try PEMF and have you looked into it because I have and was told my Mayo doctor I should try it. $795 for 45 days to try if I don't get some change I return for fuel refund. BUT WHAT IF WORKS! I was told every treatment works different on different patients. OUT OF THE BOX.

Sounds like a good plan
Let us know how it works for you!!!

I will and wish me luck for all of us with AA

Good luck!!!

I am so upset, Arachnoiditis, So many ask, Where do I go? I need help and so on? Can You Imagine patients with AA all over the world and it's still hidden. Dr. Tennant a wonderful Dr. but not as forthcoming as to as to The Who causes it. Dr. Burton, Dr. Sara Smith UK. I can't think of the others??? lack of interest [medical profession] read Burton Report, Read, Neurologists Talk Communities, As I said I now have Neurological pain from knees to feet. Boy does that hurt. Now another Pill. 9th of Sept. I had a Prolapse done. I should have listened to myself not to do it and live with the problem. It did't cause any pain, I could have excepted it. I was thinking about the position I would be in for the surgery, my spine does not curve anymore because of a spine surgeon, placement of my legs another issue. Well I was right. Aggravated my nerves , lumbar spine. Doing anything from the waist down now, showers, hurts a lot. I have a high pain threshold but this is keeping me in bed more, thats not me!!!! So frustrating to read here about AA and I feel so bad for all of you. If I see a Neurologist I'm not going to share my Diag. they won't see me. Just my experience.