Kim, your story is heartbreaking and it's a shame that they let you do what you shouldn't have done. My question to you is obviously your patient of the male clinic and what kind of reaction are you getting from them and where have they left you with your condition? I need to know this from you or anybody as where can we get help and is it at the Mayo and since we're talkin on Mayo chat forum why aren't they listening and why aren't they doing something for us. They should at least consider some of the information that Dr Tennant provided over the years with all his research and patients that he has cared for. After all in my case it was their radiologist it said I have it after my MRI with contrast was completed. Nobody sat me down and explain to me what I had and what my prognosis would be in with my care should be. I had to literally make my own arrangement to see three doctors that I know their names and know their titles in order to get an appointment to ask him a question. Both doctors disagree with the surgeon about my stimulator and one put me on some both of which I couldn't leave the house for 10 days. I am not turning away from them I just want to see where we can go and see if we can help them work through this for all our sakes. I need your thoughts if you don't mind. John