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Arachnoiditis: Looking to talk with others

Spine Health | Last Active: Apr 16 10:18am | Replies (386)

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@kimspr3

Hello Don, Dr. Tennant I am familiar with. He and other researchers found that certain types of hormones do help with pain. It is now proven BUT not one dr. I see will read 3 pages of solid information not even my P.M. Dr.! Dr. Tennant advised me NOT to have scar tissue removed. In my heart I said, don't do it, I did and now I am worse. I will never have anyone touch me, procedures again. AA patients become worse, my experience and all the good sites I have learned from.

Don, For years I have tried to get patients, family to get together, go the the Legislature to pass a bill stating in so many words, Or much better than I can. Doctors Must Inform in writing and signed, about the possibility of the LIFE CHANGING, PAINFUL SIDE EFFECTS THAT CAN HAPPEN DURING ANY SPINE SURGERY, NERVE BLOCKS, EPIDURALS, ABLATIONS, TEARING THE DURA AND CHANGE of A LIFE FOREVER. THIS WOULD BE IN WRITING HANDED TO THE PATIENT TO READ AND THAN PATIENTS DECIDES. Patients if they choose will be able to research before surgery. Berton Report, Dr. explains A.A. and how to get it! He is not afraid of the medical community! I don't want to sit back and do nothing but no one seems to be interested. I have said this before, "I Was Not Born With This it Was Given To Me" I think about the thousands of the I can't imagine how may people here and overseas who has AA and again, NO ONE CARES, Especially the Protected Doctors who never signed the Hippocratic Oath!

After my second spine surgery I became worse. Pryer to it he gave me the, promising, you will get some of your life back. What was wrong with me to listen to him? Desperation? Again I was worse with spinal fluid dripping down my legs. I just asked my P.M. If he could add more Hydromorphone to my pump and eventually stop the pills. He agreed. Maybe I will be able to sit, go to dinner with husband and friends, food shopping, sitting, walking. I will be giving my body to science, maybe it will help others especially Mothers-To-be.

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Replies to "Hello Don, Dr. Tennant I am familiar with. He and other researchers found that certain types..."

Kim, I am proactive now that I discovered what has happened to me and by the way I had a serious spinal leak last year at the Mayo and it took three surgeries to fix it and now I got this. Today I sent to the Head pain doctor will it I don't know if he's the head but it could be a copy of dr. Tenants bulletins about 20 pages about our condition. Ask him to please read it and make a comment whether it's bad, some good , or what do you think or whatever! I hope the Mayo which I do respect many ways as I've been going there for 25 years could at least take in consideration what we're talking about.. I got this report by joining this connection group who sent it to me and now I'm sending a copy of what I've received here for Mayo patients. I also sent four days ago the handbook and no response. I will keep you informed my prayers are with you and all of us and let's keep fighting. Tenant is helping me and I'm looking for other things outside the box like pemf. I got nothing to lose but try it. Kind regards Ramadan