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Arachnoiditis: Looking to talk with others

Spine Health | Last Active: 6 days ago | Replies (403)
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@toiolinger

I was diagnosed with Transverse Mylitis in 2012. My feet dropped, had to wear AFOs.I
have had a lot of pain in my back, fatigue, bowels and bladder dysfunction. The pain has gotten worse, got several steroids injections, for the past 3 years the I have had pain in my butts, legs, feet. The tingling, burning and twisting in my feet are unbearable at times. Thanks for listening.Chantaburi,

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Replies to "I was diagnosed with Transverse Mylitis in 2012. My feet dropped, had to wear AFOs.I have..."
missb | @missb | Nov 3, 2019

I have similar symptoms but they have not diagnosed me with certainty yet (being referred to neurologist). How did they diagnose you? At this point they are just saying spine neurological disease. But I have terrible pain, numbness, weakness, tingling, pins and needles, bowel issues, etc. Some things come and go and it’s unpredictable. At this point I just want to know.

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christi91 | @christi91 | Apr 11, 2023

If u don't mind. How did u get a referral to have a pain pump & are u rethinking it now with reducing your meds.

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