← Return to Severe COPD and Interstitial Lung Disease

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@robinson

I was diagnosed with IPF a couple of years ago and have been taking OFEV that is supposed to slow the deterioration of the lungs. I'll be 80 this weekend. I also had stem cell therapy in Feb of this year. At this time I still am able to do yard work but at a slower pace than in the past. OFEV is very expensive but there is a program that Boehringer Ingelheim (the drug manufacturer) offers if you need financial assistance. There are some side affects that you will need to deal with. In my case it is diarrhea. I also have an annoying cough when I exert myself to any extent. At this point my condition seems to be stable. I hope this info will help you

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Replies to "I was diagnosed with IPF a couple of years ago and have been taking OFEV that..."

Still no answers from APN, however she is consulting with the pulmonologists and going to call me with the next game plan, so for now she reduced the dosage of steroid, changed an inhaler, wants me to follow up with my cardiologists to see if we can stop the Plavix, (stent placement in February) in the event it is suggested I have an open lung biopsy. She did note on one of my labs from previous hospitalization that my LDH was CRAZY HIGH( range 222 adult), mine was 754