← Return to Severe COPD and Interstitial Lung Disease

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@aldrichgirl

I was seeing a transplant dr from Dallas & he told me I had to get my rotten teeth out and lose down to 160 lb. I got down to 180 but I just couldn't lose that last 20. I have had several other problems to deal with and been in & out of the hospital with Afib , too much C02 in my body, unexplained anemia so bad that I had to get 3 pints of blood. That's what all's been going on just since January. The transplant dr has not been back to see me. But I have recently gotten so bad that I can only pull 80% on my portable oxygen. Same thing if I get up and walk around the house with my concantrator . Very hard to exercise when you can't breathe. With this 100+ heat we're having I've basically become housebound because I can't breathe in this heat either. I'm seeing a new lung fellow next month. They are talking about starting on a med for the interstitial. We'll see. I appreciate your help and advice. Thank you. aldrichgirl

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Replies to "I was seeing a transplant dr from Dallas & he told me I had to get..."

@aldrichgirl my prayers are with you hope you find some relieve

Thank you so much. That, I believe, counts the most!

I have IPF and my breathing is deteriorating also. I am goning to Dallas in a month or so. Do you know what drug they are considering?