← Return to HELP!! PLEASE!! Dent and Extreme pain in Right leg

Discussion

HELP!! PLEASE!! Dent and Extreme pain in Right leg

Chronic Pain | Last Active: Jul 3, 2018 | Replies (3)
Comment receiving replies
@jamienolson

Hello @janekhloe. Welcome to Mayo Clinic Connect! I'm sorry to hear you are in pain with your leg and the other medical issues you have been faced with. Please know that here on Connect we are not medical professionals and can not give medical advice. However, we can surely try to help connect you with a community member that has possibly experienced something similar. You will notice that I have shared your post with members in the Bones, Joints and Muscles group in hopes to reach members there.

Have you considered seeking medical attention at a large facility that attends to patients who need multidisciplinary care? such as Mayo Clinic?

Jump to this post

Replies to "Hello @janekhloe. Welcome to Mayo Clinic Connect! I'm sorry to hear you are in pain with..."
janekhloe | @janekhloe | Jul 1, 2018

Hello, okay thank you.

Yes actually I have been trying to get into the Minnesota Mayo Clinic since January, into the genetics department because they have an EDS specificalist. My doctors and specialist have sent in report and letters and they still will not call me back. They told me to stop calling and they will call me.

I have also tried UCSF, their genetics doctor for EDS and their waiting list is completely full.

I’m just getting by everyday, the best I can.

VIEW AND REPLY