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Long QT Syndrome: Want to connect with others

Heart Rhythm Conditions | Last Active: Sep 3 11:48am | Replies (55)

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@hopeful33250

Hello to Everyone in this discussion about Long QT Syndrome. I would like to post a link to a recent Mayo Radio broadcast about Long QT Syndrome with Michael Ackerman, M.D., a Mayo Clinic cardiologist.
https://www.youtube.com/watch?time_continue=2&v=bMMSciKsQFk&feature=emb_logo

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Replies to "Hello to Everyone in this discussion about Long QT Syndrome. I would like to post a..."

Thanks for sharing this @hopeful33250. Dr. Ackerman was our daughter's doctor who diagnosed her Long QT Syndrome. As she says - he's fantastic! He helped her through a myriad of treatments until she found what worked best for her. She started with beta blockers which had some side effects on her, then to a subcutaneous defibrillator (S-ICD) and now has a pacemaker which has worked best with her active lifestyle.

Recent?