@cheymallery, my daughter who is 30 now had the same issues with every medication they tried to use for the Long QT. She has Long QT type 2 It was heartbreaking for me as dad trying to help her through the depression caused by the beta blockers. It took me awhile to realize it was the drugs causing it. Same thing with the anxiety meds. She told them she wasn't going to take them anymore which is when the subcutaneous ICD came into the discussion and she had one implanted. At first it was like magic for her but then the shocks came from the false positives and would knock her down. After the first few they started tweaking the programming but nothing they were able to do stopped it from happening so she made the decision to remove it. She tried the beta blockers again but stopped them because she was falling back into the anxiety and depression again. That concerned me because I knew she needed something so I was happy when the doctor convinced her to get the pacemaker without the defibrillator so that she could be monitored. I think that's been a couple of years now and she's back to running 5Ks with her friends and living a normal life.

I would keep asking questions and learn as much as you can about any medication you are taking. Then discuss any problems you are seeing with your doctor and see if there are other options available for you.

Take care...
John

@cheymallery I sounds as if your physical problems have isolated you and that is very sad and difficult. Are there any support groups in your area for those who have chronic illnesses? Perhaps you could contact the American Heart Association and see what they might offer you? Here is their website, http://international.heart.org/en and http://www.heart.org/HEARTORG/Conditions/Arrhythmia/AboutArrhythmia/Conduction-Disorders_UCM_302046_Article.jsp#.Wzde2tJKiM8

I hope to hear from you again,

Teresa

I'm so sorry to hear about your situation. It's very similar to mine I'm 35 years old and I feel like my life has been ripped from my hands! I'm not sure which type I have yet I'm seeing my doctor today. The other day I passed out and smashed my face and broke my nose... that was my first episode of fainting I normally have seizures (being ecliptic as well) I get an idea of when I'm going to have one.. this was scary because it came out of nowhere. They said at the nurmous ER visits all summer long a million different things. One where I had low potassium and magnesium made the most sense.. they as ER doctors are not capable of diagnosing an actual type... but I wish they would at least give me an idea of how your releasing me with potassium in the negative cbc over 12.2.. idk seems like everything in my opinion has changed. Depression is the worst I have ptsd so I get anxiety over everything.. Depression i had to stop taking my meds bc it was the reason possibly 3 years ago when it first appeared that I needed to get off of most my meds. I did and went asymptomatic for 2 years... just this June it came back and came back for the worst (symptom wise) my last elongation was 490. I'm actually getting a portable Ekg. You should look into like a smart watch that can monitor your sinus rhythm maybe it might help give you an idea when you can do something and when you can't. Staying hydrated with electlytes as you know help... so I would just let your friends know you have minor restrictions and make sure they are aware of your Depression and it honestly makes you feel better with them being around. In the beginning a couple of my friends wouldn't even talk to me because they where afraid to be around me.. but now having the watch I can reassure myself so I don't scare everyone away. I hope things get better for you! I'm praying for you and everyone on here.. this by far is a horrible heart condition seeing as there isn't much research backed behind it!