← Return to The psychological aspect of dealing with bronchiectasis and MAC.

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@jkiemen

@sophie1019 I feel that I am getting more depressed as time goes on. Someone posted that maybe it was mourning the loss of health and vitality. I think that is part of it but the unknown is also depressing and all the what ifs and staying away from people because of colds, flu's and viruses. All of it gets overwhelming. Not having a great treatment option is the other. I keep saying WHY IS THERE NOT ANY PROGRESS IN TREATING THIS DARN THING!!!!. If I didn't have prayer, I don't know if I could make it through.

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Replies to "@sophie1019 I feel that I am getting more depressed as time goes on. Someone posted that..."

@kiemen Just noticing you are dancing with the devil. Depression is a tough one. I wanted to mention something that I have recently come across that has had what I would call a dramatic effect on my mood. It is a supplement called SAMe. I do not think there is much difference in the brands...Most places carry it...drugstores, Walmart etc. I have found it more uplifting than an antidepressant...and it is a natural supplement. It helps produce and regulate hormones and is found naturally in our bodies..There are a few side effects (see below for Mayo site review) but usually not at a low dose, which is what i am on. The only problem is if you are already on antidepressants it is not advised to mix the two. It just seems to brighten everything....and believe me, I am not feeling terribly bright over contracting this disease but feel much better with this supplement. https://www.mayoclinic.org/drugs-supplements-same/art-20364924 I hope this might help you.

I'm a clinical psychologist and, in the past, have recommended SAMe to several clients who did not want to take an antidepressant It's used in Europe, quite a bit, I'm told.

It was helpful to some people, not to others and some had side effects like upset stomach.Glad it has helped you. It's a good reminder to keep trying. There are many things out there that can help. I'm so grateful to Terri for her recommendations. I'm in a better place because of them.

@franthony, Hi there. I don't know why, but this is the first time I am seeing this post. I totally understand the hurt you feel about your sister's lack of empathy for you. My sister was the same way. I don't cough now and look good, but at the time that I told her, I was coughing violently for years, and hyper sensitive to everything, and repeatedly getting pneumonia. It was obvious something was very wrong with me. I really don't have any kind of relationship with her. My close friends are my sisters.

@windwalker this is really helpful. My wife was recently diagnosed with bronch and I am trying to figure out how to change routine and add value... more value any way.

@franthony,,,I have dealt with 3 sisters for 73 years so l can appreciate what you are feeling somewhat with the response from the sister saying "so what,,,etc" I can recall bitching about a nasty sister comment to a dear friend. Her comment was …."we can choose our friends but not our relatives" It is soooo true!!!! terri aka tdrell

@mediaguy Hello. Welcome to our group. You are a good guy to come on this site on your wife's behalf. Does she have any interest in coming online with us also? This is a good place to benefit both of you. Do you have any questions?

@windwalker she's been reading the posts as well. I'm sure she'll jump in when she's ready. Nothing yet. Just trying to get more informed.

I have found it to be life altering, physically as well as emotionally. For me, it is a huge disappointment because I'm simply not a well person and I always have been. I was an athlete. Now I have overwhelming fatigue and a lot of damage in my lungs from MAC and Bronchiectasis .
On the other hand, when the radiologist read the first CT scan and reported it was highly suspicious of metastatic disease, Recommending a pet scan, I thought I probably had lung cancer. That was so profoundly sad. So I'm just thankful that I can live with this MAC lung disease.
But it's had a huge impact on my life.