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DiscussionThe psychological aspect of dealing with bronchiectasis and MAC.
MAC & Bronchiectasis | Last Active: Jul 24 7:18am | Replies (49)Comment receiving replies
Replies to "@sophie1019 I feel that I am getting more depressed as time goes on. Someone posted that..."
I'm a clinical psychologist and, in the past, have recommended SAMe to several clients who did not want to take an antidepressant It's used in Europe, quite a bit, I'm told.
It was helpful to some people, not to others and some had side effects like upset stomach.Glad it has helped you. It's a good reminder to keep trying. There are many things out there that can help. I'm so grateful to Terri for her recommendations. I'm in a better place because of them.
@franthony, Hi there. I don't know why, but this is the first time I am seeing this post. I totally understand the hurt you feel about your sister's lack of empathy for you. My sister was the same way. I don't cough now and look good, but at the time that I told her, I was coughing violently for years, and hyper sensitive to everything, and repeatedly getting pneumonia. It was obvious something was very wrong with me. I really don't have any kind of relationship with her. My close friends are my sisters.
@windwalker this is really helpful. My wife was recently diagnosed with bronch and I am trying to figure out how to change routine and add value... more value any way.
@franthony,,,I have dealt with 3 sisters for 73 years so l can appreciate what you are feeling somewhat with the response from the sister saying "so what,,,etc" I can recall bitching about a nasty sister comment to a dear friend. Her comment was …."we can choose our friends but not our relatives" It is soooo true!!!! terri aka tdrell
@mediaguy Hello. Welcome to our group. You are a good guy to come on this site on your wife's behalf. Does she have any interest in coming online with us also? This is a good place to benefit both of you. Do you have any questions?
@windwalker she's been reading the posts as well. I'm sure she'll jump in when she's ready. Nothing yet. Just trying to get more informed.
I have found it to be life altering, physically as well as emotionally. For me, it is a huge disappointment because I'm simply not a well person and I always have been. I was an athlete. Now I have overwhelming fatigue and a lot of damage in my lungs from MAC and Bronchiectasis .
On the other hand, when the radiologist read the first CT scan and reported it was highly suspicious of metastatic disease, Recommending a pet scan, I thought I probably had lung cancer. That was so profoundly sad. So I'm just thankful that I can live with this MAC lung disease.
But it's had a huge impact on my life.
@kiemen Just noticing you are dancing with the devil. Depression is a tough one. I wanted to mention something that I have recently come across that has had what I would call a dramatic effect on my mood. It is a supplement called SAMe. I do not think there is much difference in the brands...Most places carry it...drugstores, Walmart etc. I have found it more uplifting than an antidepressant...and it is a natural supplement. It helps produce and regulate hormones and is found naturally in our bodies..There are a few side effects (see below for Mayo site review) but usually not at a low dose, which is what i am on. The only problem is if you are already on antidepressants it is not advised to mix the two. It just seems to brighten everything....and believe me, I am not feeling terribly bright over contracting this disease but feel much better with this supplement. https://www.mayoclinic.org/drugs-supplements-same/art-20364924 I hope this might help you.