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Non Hodgkin's Lymphoma- Watch & Wait Approach

Blood Cancers & Disorders | Last Active: Oct 7 11:27am | Replies (234)

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@travelgirl

@vonbaron36 I been on a Watch and Wait since January of 2016. I dont feel or see any swollen lymph nodes. Mine lymph nodes they r waiting r near my Aorta. That is a good sign you could be on watch and wait your whole life. 🙂

@gingerw Hi Ginger, nice to meet you. I been swamped with work and my move. Don't believe you and I have chatted yet.
What made the new doctor diagnose you with lymphoma? I am not familiar with MGUS. Is that a Lymphoma? Now did the Doc say what exact kind of non-hogkins lymphoma you have? There are about 65 different types associated with this disease. You also mention kidney disease. Is that a complication from the MGUS? How is your blood work?

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Replies to "@vonbaron36 I been on a Watch and Wait since January of 2016. I dont feel or..."

@travelgirl Hi Jackie. Two years ago I was told I had MGUS, and believed that, with quarterly bloodwork. In December 2018, my hematologist-oncologist said "let's go 6 months this time, since everything seems to be looking good". In June my bloodwork came back wonky; it was also right at the time of moving out of state. A PET CT scan and appt with new h-o here, and he told me "oh, I see you were diagnosed with low-grade Non-Hodgkins Lymphoma 2 years ago". I went back and read the very fine print of that first bone marrow biopsy and saw what he did, but my old dr never told me, nor followed up with suggested additional testing. In less than 2 weeks I get another biopsy. He also ran testing to tell me what kind of lymphoma it is, but haven't gotten the results yet. My kidney disease was diagnosed in 2015, and is ideopathic, very rare; my GFR is about 32%.
Ginger