← Return to Non Hodgkin's Lymphoma- Watch & Wait Approach
DiscussionNon Hodgkin's Lymphoma- Watch & Wait Approach
Blood Cancers & Disorders | Last Active: 1 hour ago | Replies (238)Comment receiving replies
Replies to "@vonbaron36 I been on a Watch and Wait since January of 2016. I dont feel or..."
@travelgirl Hi Jackie. Two years ago I was told I had MGUS, and believed that, with quarterly bloodwork. In December 2018, my hematologist-oncologist said "let's go 6 months this time, since everything seems to be looking good". In June my bloodwork came back wonky; it was also right at the time of moving out of state. A PET CT scan and appt with new h-o here, and he told me "oh, I see you were diagnosed with low-grade Non-Hodgkins Lymphoma 2 years ago". I went back and read the very fine print of that first bone marrow biopsy and saw what he did, but my old dr never told me, nor followed up with suggested additional testing. In less than 2 weeks I get another biopsy. He also ran testing to tell me what kind of lymphoma it is, but haven't gotten the results yet. My kidney disease was diagnosed in 2015, and is ideopathic, very rare; my GFR is about 32%.
Ginger