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Non Hodgkin's Lymphoma- Watch & Wait Approach

Blood Cancers & Disorders | Last Active: Oct 7 11:27am | Replies (234)

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@travelgirl

I just want to check in with all the Lymphoma Warriors out there. How is every feeling lately?
@bordercolliecra @susanlim @ginpene05 @vonbaron36 @njnana @stephaniet @vcollins @chuck218 @beckyjohnson @scootermckim @vanveer21 @mrsalvingraves3 @zellheff @pammyzammy @roberthall0452 @dianebumbach @sograteful
I recently moved and been on and off the last few months. Doing new house stuff and work has picked too.
I haven't had chance to see how you are all doing?
I been tired like usual but not sure if its from moving, working or a toothache I been dealing with.
Both me and my husband have had issues since going to the dentist to get our teeth cleaned. UGH.. Nothing worse than a toothache.
How have all your check up's been going?
I do hope you are all doing well?
Jackie

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Replies to "I just want to check in with all the Lymphoma Warriors out there. How is every..."

Thank you for asking. Still on watch and wait. Hot flashes that sometime worry me—don’t know how to distinguish them from possible lymphoma sweats. ?? Some ups and downs psychologicalky, but manageable. Good luck with the tooth!

Congratulations on your new home, Jackie! It sounds like you may have an infection in your mouth, so it would be a good idea to get checked in case medication is needed. I have been stable and continue on 'watch & wait'. I return to the oncologist for a 6 month exam in late September. My obvious symptom continues to be the fatigue. The heat and humidity make it worse at this time of the year. I just know I need to be disciplined and go to bed at a reasonable hour. Hope you are doing well other than the toothache, which will hopefully be gone quickly!

@travelgirl This is my first post on this group. Last week i went to my new hematologist-oncologist. In Oct 2017 my oncologist told me I had MGUS, after a bone marrow biopsy, and had been monitoring it every three months. Last December she decided to wait for six months. Wrong thing to do. All my blood values went wonky. I also am Stage 3b kidney disease, and those values were off their normal, too. In the midst of all this, I moved to another state. My new h-o told me "I see you have low-grade Non-hodgkins Lymphoma for 2 years, so you've had a while to get used to this, and now these possible complications". I was so stunned I didn't tell him the other h-o hadn't told me that, ever. All I was ever told was MGUS. I have a bone marrow biopsy in 2 weeks, with a consult with new nephrologist next week; hoping to not repeat the kidney biopsy. Because of the complicated case of NHL + kidney issues, they have to look at everything. No drama from me, I want the facts.
Ginger