← Return to Non Hodgkin's Lymphoma- Watch & Wait Approach

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@travelgirl

@susanlim Well I was told in order to stage my Lymphoma I needed to be scanned every 3 months in the beginning.

Plus I also was diagnosed with Cecum cancer so I have Colo rectal surgery watching the area around my stomach. Since I actually had what they call Cecum cancer a rare colon cancer. They are making sure, I guess it was really a stage 1 cancer?

Now my Follicular Lymphoma was located around my aorta. That is the location of the swollen lymph nodes. Maybe because of the location??? They then after the first year felt I was stable to move me out to 6 months did that for a year. Then I was moved to 1 year scans.

Well my last set of scans I believe he said 1 lymph node grew again. They had been steadily shrinking in size. This was last September , when the one grew. Hematology put me back to a six month scan. Just to make sure nothing else is going on?

To be honest when you have as much I do getting monitored. I am down to asking the DR's this at the end of each visit.

Do I need to let the coroner know to be expecting my body soon? And I dying anytime soon?

I am also a Glaucoma suspect. That Doc starts rambling with stuff, I have no clue what he is saying. I just ask him, is it time I order the seeing eye dog yet?

Plus they watch me for a suspicious spot on one breast..

Plus they monitor me for Barrett's esophagus.

Between everything these Dr's are watching I am numb to all of it. They will make you nuts with worry. I just figure I am at that age where Dr's start to torture you?

I have friends my age seeing heart Drs, popping pills, another on diabetes medicine, another is taking pills for lupus, I can keep going with everyone's illness.

I personally do not want Chemo and Radiation. It is my understanding from what I been told by several Dr's only is that needed when it lymphoma proposes a problem. I several friends too with various lymphoma one lady is a stage 4 with crazy blood work. Se feels fine all the time even after of 4 years of bad blood work. No symptoms other than that. She also has an enlarged spleen. They are still watching her. Dr's said there is no need for Chemo at this point.

So honestly I do not understand the treatment. How they choose certain people to give chemo, and radiation too? Or why Dr's all scan people differently?
I figure the longer I have to wait, the better there is a chance, to finding a cure.

Jackie

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Replies to "@susanlim Well I was told in order to stage my Lymphoma I needed to be scanned..."

It must be the location. Good luck with all of this!