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DiscussionNon Hodgkin's Lymphoma- Watch & Wait Approach
Blood Cancers & Disorders | Last Active: 11 hours ago | Replies (238)Comment receiving replies
Replies to "I was diagnosed in the fall of 2015 with a Hodgkin lymphoma that responded to treatment..."
Hi - I had replied to an earlier post asking if it was LP Hodgkins- I see from this post that it is. Very helpful information.
My now 27 YO son was diagnosed with LP Hodgkins in the fall of 2017. Although he did’nt have much in the way of symptoms - a significantly enlarged underarm lymph node led to the eventual diagnosis. It was pretty advanced at that point - stage 4 in spleen and bones. He went through a course of Rituxan. That reduced the extent of disease significantly. After a few months though it grew again so 6 RCHOP treatments which he handled well. Went into remission. Fast forward 6 months and PET scan shows a few areas of increased metabolic activity.
We’re now sorting out options - whether to biopsy again, just repeat scan in a few months, etc, etc.
You provide good advice re: seeking multiple opinions. We may see if we can get insurance approval for an evaluation at Mayo. As you know, because this type is so rare not a lot of experience out there in treating.
Best to you!
Thanks for your info. Glad to hear you are doing well.